My hope for new scleroderma patients

I have a dream! Ok well nothing that dramatic but I do have a wish for scleroderma and patients newly diagnosed. I would love for there to be a central landing page of sorts for new patients. One that doesn't scare the ever living hell out of them. On top of that, any doctor giving the diagnosis must give the patient the web address with a pamphlet outlining what scleroderma is and have that pamphlet advertise the same web page.

The next day.....refreshed

So I've had a rough couple of weeks due to my neuropathy. My mobility has been greatly reduced. Getting around the house is ok. It's anything outside that's been rough. Groceries have suffered for example. It's why I haven't posted much on the blog, though I've written a few I didn't post because I found I was a little bitter and the posts weren't the spirit I wanted to convey.

You can't win them all.

Sometimes we lose. Why not turn it into a win or a draw? Let me clarify. I went to bed the night before last with many great dreams and plans for the next day. Do some housecleaning, go out to eat, write an article, phone some friends and hit the pharmacy and grocery store. Then I woke up, rather, I was abruptly woken from a peaceful sleep by a shooting pain in my left elbow. Well shit! I knew that feeling. Just tore open the ulcer on my elbow when I rolled over and my sweater snagged a hook on the ulcer. Meh. Not to bad I thought. No more sleeping but the pain should be manageable. Don't even think I'll need a painkiller. Then I got up and started the morning routine. Owww! Wtf!? Yup I just tore open the ulcer on my other elbow while changing. Hmmm ok. Didn't even know I had an ulcer on that elbow. I waited about 45 minutes before deciding to take a painkiller. Well, there goes today's plans. Fuck.